The girl, Sabah, is suffering from the first type of spinal muscular atrophy disease, according to the medical report.
The Sharjah Charity International (SCI) has joined a race against time to collect Dhs8 million to save Sabah, a Syrian girl, and provide for her medical treatment.
The girl is suffering from the first type of spinal muscular atrophy disease, according to the medical report, which confirmed that the health condition of the girl who has not yet completed her second year, is very serious and there is an urgent need for her to receive proper medical treatment.
In the meantime, the girl’s parents were unable to give her anything other than heartbreaking tears.
In light of its humanitarian message based on the directives of His Highness Dr Sheikh Sultan Bin Mohammed Al Qasimi, Supreme Council Member and Ruler of Sharjah, the SCI was resolved to adopt Sabah’s case, relying on the support of philanthropists.
As part of its approach and policy of bringing joy to the faces of the needy, wiping away their tears and relieving their pain, the SCI said donations could be received via SMS as well as SCI’s website, smart link, bank accounts and hotline.
“We call on philanthropists to fully support us to be able to provide for the medical treatment expenses of our girl Sabah, as her health condition is deteriorating and any delay in getting the necessary medical treatment means that her chances of survival are diminishing, according to the medical report,” said Abdullah Sultan Bin Khadim, Executive Director of SCI.
“The costs of treatment are very high and the cost is the largest in cases of medical assistance requests, but the SCI is determined to help Sabah recover from her illness, which accompanied her from birth, and bring joy to her parents”, he added.
Sabah’s case is similar to that of the Iraqi girl Lavin, who received the world’s most expensive injection on Thursday, March 4, after His Highness Sheikh Mohammed Bin Rashid Al Maktoum, Vice President and Prime Minister of the UAE and Ruler of Dubai, had funded her medical treatment at Al Jalila Children's Specialty Hospital. Both girls suffer from spinal muscular atrophy, a genetic disease caused by a mutation in the motor neuron gene.
The children, aged between six months and two years, are accompanied by a family member and an attendant. All of them are currently in a 10-day quarantine period at the hospitals.
Laveen is expected to receive the injection on Thursday morning, and she will be subject to observation round the clock. The rehabilitation programme will continue for three months.
Cell and gene therapies combined with the burgeoning digital health and artificial intelligence shall remain to be a nucleus and continually pivot the intensely-competitive pharmaceutical industry, accelerating solutions for improved health and better outcomes.
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